The AllTrials campaign asks for all trials to be registered and their results published. says mandatory disclosure could affect patient privacy, stifle discovery, and allow competitors or unscrupulous actors to use the information. says we need the evidence to make informed decisions about medicines.There is a very interesting battle taking place between AllTrials and PhRMA.
PhRMA Mission Statement:
PhRMA's mission is to conduct effective advocacy for public policies that encourage discovery of important new medicines for patients by pharmaceutical and biotechnology research companies. To accomplish this mission, PhRMA is dedicated to achieving these goals in Washington, the states and the world:
- Broad patient access to safe and effective medicines through a free market, without price controls;
- Strong intellectual property incentives;
- And transparent, effective regulation and a free flow of information to patients.
The Cargo Cult Scientist is pretty transparent with opinions on the honesty of the pharmaceutical industry. I think we need help being honest. It's not that we're bad people, just that we are in bad situations. Specific outcomes make or break our careers. We have an incentive to highlight the good and hide the bad. In science however, we have to leave our hopes and dreams at the door. What we perceive as good and bad should not effect our judgement. The problem is that we are all human beings. The solution is transparency.
If you've made up your mind to test a theory, or you want to explain some idea, you should always decide to publish it whichever way it comes out. If we only publish results of a certain kind, we can make the argument look good. We must publish both kinds of results. - R. Feynman